Sorry to hear your news. We’ve also had friends and family who have had these experiences, and we have offered our support in every way possible, as you are doing. Although this disease is still challenging, the medical options today offer more hope than ever before.
Whether we accept it or live in denial, our lives on earth are, even at best, as I’ve heard it said, “transient vapors,” and, as you mentioned, that is all the more reason to live the life you want to live today, rather than waiting for a future that may never materialize.
I wish you, your family and friends the best possible outcome in all of this.